Introduction: Benign Prostatic Hyperplasia (BPH) affects approximately 25% of men in their 50's rising to over 50% of men in their 80's. The impact of BPH is physical, social, and psychological. Men with similar clinical presentations face a variety of treatment options with varying degrees of risk and projected outcomes. Although symptomology and clinical presentation is well understood, there is a lack of knowledge and consideration of how patient values and priorities influence treatment choices and shared decision making (SDM) alongside variation in clinical consultation processes.
Purpose: The aim of the project is to develop an intervention for use in clinical practice to improve patient experience and support treatment decision-making for BPH
Method: Drawing on the Person-based approach, the project has used a mixed-methods approach. Qualitative interviews, a systematic review, a multi-site observational study and stakeholder workshops have been undertaken.
Results: Findings show that existing interventions lack the focus on patient needs and values required for patient-centred care, with behavioural theory and behaviour change techniques not explicitly referenced. Patients, pre- and post-operatively, indicate that social and psychological factors are more impactful in terms of both driving individuals to seek treatment, and viewing surgical outcomes as "good". Observations of clinical practice demonstrate SDM occurs inconsistently both within and across hospital sites with clinicians focusing on clinical symptoms and lacking acknowledgement of patient preferences and priorities. Patient and stakeholder contributions demonstrate the value of collaborative approaches to improve intervention design.
Conclusions: Our findings indicate areas for improvement in patient experience and treatment decision-making for BPH. By adopting a theory and evidence-informed collaborative approach our goal is that the subsequent intervention will provide a simple, but effective, means to improve patient and clinician SDM and help optimise patient treatment experience.