1232 - CO-DESIGNING A TAILORED PROGRAM FOR MANAGING SUBSTANCE USE IN ACQUIRED BRAIN INJURY

Session: D06S035 - Service Innovation & Implementation 1
AUTHORS:
Lindsay Hannah (Alcohol and Drug Assessment Unit, Princess Alexandra Hospital ~ Brisbane ~ Australia) , Gullo Hannah (School of Health and Rehabilitation Sciences, The University of Queensland ~ Brisbane ~ Australia) , Mitchell Jessie (The Hopkins Centre, Griffith University ~ Brisbane ~ Australia) , Ponsford Jennie (School of Psychological Sciences, Monash University ~ Melbourne ~ Australia) , Fleming Jennifer (School of Health and Rehabilitation Sciences, The University of Queensland ~ Brisbane ~ Australia) , Wong Dana (School of Psychology and Public Health, La Trobe University ~ Melbourne ~ Australia) , Ownsworth Tamara (The Hopkins Centre, Griffith University ~ Brisbane ~ Australia) , Reid Natasha (Child Health Research Centre, The University of Queensland ~ Brisbane ~ Australia) , Dawe Sharon (School of Applied Psychology, Griffith University ~ Brisbane ~ Australia) , Russell Trevor (RECOVER Injury Research Centre, University of Queensland ~ Brisbane ~ Australia) , Brown Hannah (Acquired Brain Injury Outreach Service, Metro South Health ~ Brisbane ~ Australia) , Lion Katarzyna (School of Applied Psychology, Griffith University ~ Brisbane ~ Australia) , Piatkowski Timothy (School of Applied Psychology, Griffith University ~ Brisbane ~ Australia) , Lemsky Carolyn (Community Head Injury Resource Services (CHIRS) ~ Toronto ~ Canada) , Beaulieu-Bonneau Simon (Faculty of Social Sciences, School of Psychology, Université Laval ~ Québec City ~ Canada) , Doig Emmah (Surgical Treatment and Rehabilitation Service (STARS) Education and Research Alliance, The University of Queensland and Metro North Health ~ Brisbane ~ Australia) , Turner Ben (School of Health, The University of the Sunshine Coast ~ Sunshine Coast ~ Australia) , Kendall Melissa (Acquired Brain Injury Outreach Service, Metro South Health ~ Brisbane ~ Australia) , Griffin Janelle (Brain Injury Rehabilitation Unit, Metro South Health Hospital and Health Service, Princess Alexandra Hospital ~ Brisbane ~ Australia) , Bell Ryan (Brain Injury Rehabilitation Unit, Metro South Health Hospital and Health Service, Princess Alexandra Hospital ~ Brisbane ~ Australia) , Gould Kate (School of Psychological Sciences, Monash University ~ Melbourne ~ Australia) , Schneider Knut (Alcohol and Drug Assessment Unit, Princess Alexandra Hospital ~ Brisbane ~ Australia) , Simpson Grahame (School of Health Sciences, Faculty of Medicine and Health, University of Sydney ~ Sydney ~ Australia) , Gullo Matthew (Alcohol and Drug Assessment Unit, Princess Alexandra Hospital ~ Brisbane ~ Australia)
Abstract text:
Introduction: Substance use disorder (SUD) is one of the most common mental disorders. Individuals with an acquired brain injury (ABI) are at increased risk of SUD, which reduces rehabilitation engagement and increases risk of subsequent brain injuries (e.g., from a fall). Effective interventions for ABI and SUD exist in isolation, but are inaccessible to individuals with both.


Purpose: Co-design a SUD intervention optimised for people with ABI.


Method: We used co-design methods and user-centred design principles. Six people with lived experience of substance use in ABI participated in two co-design rounds. In round one, a needs analysis was used to develop a shared understanding of the experiences and challenges faced by people with ABI seeking substance use treatment and consider ways to optimise delivery. The Project Advisory Group reviewed these findings and provided further feedback for intervention refinement. An optimised intervention was drafted and shared with the consumers in a second round of co-design to gauge the intervention's appropriateness and feasibility.


Results: The co-design team comprised six consumers with lived experience of ABI (ABI=5; family member=1) and substance use (methamphetamine=3, alcohol=2, cannabis=1). Needs analysis priorities identified were: 1) better-equipped care to support individuals with ABI+SUD (e.g., in-home); 2) treatment tailored to each individual's needs; 3) holistic treatment inclusive of one's environment, community, and broader goals; 4) meaningful, personalised support person involvement. Priorities highlighted during the draft intervention 'walk-through': 1) tailoring information presentation to individual needs (e.g., visual, paper-based/digital, shared with support person); 2) inclusion of consumer-generated materials (e.g., testimonials, completed worksheets); 3) flexible content pacing (e.g., more/less time on psychoeducation).


Conclusions: Engaging consumers with lived experience in co-design is recommended to ensure meaningful and clinically feasible psychosocial intervention development. Future research will evaluate the acceptability, feasibility, and efficacy of the co-designed SUD intervention optimised for individuals with ABI.